Advertisement

Updated July 23rd, 2021 at 07:17 IST

Kerala HC questions govt on Rs 16.5 crore funding raised for treatment of child with SMA

Kerala HC enquired state government about Rs 16.5 crore collected through crowdfunding for the treatment of 6-year old suffering from SMA who died recently

Reported by: Vidyashree S
Kerala
Credit: PTI/ANI | Image:self
Advertisement

On Thursday, July 22, the Kerala High Court has asked the state government to provide details concerning Rs 16.5 crore collected through crowdfunding for the treatment of a child who died of Spinal Muscular Atrophy (SMA). The Court has enquired if the collected money can be used for the treatment of other children who are suffering from rare diseases. 

6-year old dies due to Spinal Muscular Atrophy

The 6-year-old Imran Mohammad was on ventilator support at the Institute of Maternal and Child Care. He had been under treatment for SMA when he was just a month old. But, on Tuesday, July 20, he breathed last due to Spinal Muscular Atrophy at Kozhikode Medical College.

The young boy is from Perinthalmanna in Malappuram district is the son of Arif and Ramisa Tasni. 

Earlier, Arif had approached the Kerala High Court and filed a petition to direct the government to import the necessary drug required for his son's treatment.

Acting on the petition, the court had directed forming a five-member medical panel to examine the child's condition and file a report.

The court will look into this case on July 26.

Kerala CM's letter to PM Modi

Kerala Chief Minister Pinarayi Vijayan had written a letter dated July 8  to PM Modi and provided a detailed report on the condition of the 6-year old Muhammed who is undergoing treatment for SMA. The medicine is very expensive cannot be afforded by the family. The cost of the medicine is around 18 crores. 

CM wrote, "I request you to give directions to the Union Finance Ministry to take steps not to levy Customs duty and Integrated Goods and Services Tax (IGST) in this case involving import of the life-saving drug zolgensma".

Pregnant women with a rare disease in Lucknow

In May, the medical fraternity of Queen Mary's Hospital in King George's Medical University, Lucknow successfully treated a 35-year-old pregnant woman suffering from a rare disease and COVID-19. The woman, who was suffering from Idiopathic Thrombocytopenic Purpura along with COVID-19 also gave birth to a healthy baby girl after defeating the disease and the virus under proper medical care.

(With ANI input)

(Image credit: PTI/ANI)

Advertisement

Published July 23rd, 2021 at 07:17 IST

Your Voice. Now Direct.

Send us your views, we’ll publish them. This section is moderated.

Advertisement
Advertisement

Trending Quicks

Hardik Pandya
2 minutes ago
Shahjahan Sheikh in CBI Custody: First Visual Emerges | WATCH
7 minutes ago
Lok Sabha Polls: Nakul Nath Declares Assets Worth Rs 700 Crore
15 minutes ago
Kevin Pietersen
16 minutes ago
CM Punk and Vince McMahon
17 minutes ago
biotcoin
21 minutes ago
BCAS started the continuous exercise of monitoring the time of arrival of baggage at belts of six major airports in January 2024.
25 minutes ago
Government Approves Major Bureaucratic Rejig with Key Appointments | LIVE
27 minutes ago
Advertisement
Advertisement
Advertisement
Whatsapp logo